There are no words 💛
It is confirmed, I will be receiving a kidney transplant on May 1st.
And for all you fellow fact-checkers out there, my exam is before May 1st, not March 🙄 I wasn’t really paying attention to the details lol
MAAP AKU CURHAT PAGI PAGI BUTA SEPERTI INI ..
BIAR KALIAN TAU , JADI AKU ITU TIDAK SEMUDAH YANG KALIAN LIHAT 😊
. HANYA SAJA AKU TIDAK PERNAH MAU MELIHATKAN BAHWA AKU INI SAKIT . JIKA AKU TERLIHAT SAKIT , AKU KASIAN SAMA ORANG TUAKU DAN TEMAN TEMANKU YANG SUDAH BANYAK MENSUPPORT DAN MENDOAKAN KU SAMPAI SEJAUH INI !!!!
AKU SELALU BERUSAHA UNTUK TERSENYUM , IKHLAS , CERIA DAN KUAT😇
WALAUPUN TERKADANG HATI , BATIN DAN BADAN AKU SUDAH LELAH !!! SUDAH CAPEEKK DAN PUTUS ASA !! HARUS BOLAK BALIK K RUMAH SAKIT 2X DALAM SEMINGGU UNTUK CUCI DARAH !!!
TAPI AKU TIDAK PERNAH MAU RASA ITU TERUS MEMBESAR , KARNA AKU HARUS BANGKIT , AKU TIDAK MAU KALAH DENGAN PEMYAKITKU !!! MESKIPUN SAKITKU SULIT DI OBATI DAN BISA KAMBUH KAPAN SAJA . SUDAH MAU HAMPIR 3 TAHUN AKU MENJALANI CUCI DARAH, BEBERAPA KALI AKU KOMA DAN KRITIS MASUK ICU .
TAPI ALLAH MASIH SAJA BAIK , MASIH TERUS MEMBERIKU KEKUATAN DAN KESEMPATAN !!!!! AKU YAKIN ,AKU BISAA MELEWATI SEMUA INI 😇🙏
KARNA AKU MASIH INGIN TERUS BERUSAHA MEMBAHAGIAKAN ORANGTUAKU DAN ORANG ORANG YANG SUDAH SAYANG PADAKU .
BERKAT MEREKA LAH AKU MASIH BISA BERTAHAN SEJAUH INI .. MASIH BISA KETAWA KETIWI , MASIH BISA KERJA , MASIH BISA MAIN ,MASIH BISA MOTORAN JUGAAA .. THANKS GOD 😇🙏!! #kidneywarrior#hemodialysispatient#chronickidneydisease#gagalginjal#gagalginjalkronik
I can’t tell you how many times focusing on the positives saved me!!! I would catch myself drowning in my own thoughts, overthinking my situation and coming up with worst case scenarios. It’s not meant to be easy, but being positive helps. Even if it doesn’t seem like it, you have good things going for you in your life! Yes you do! No matter how small or insignificant it seems to you, there’s probably someone out there who lacks what you have. Always be grateful and find your strength through the positives 🙏✨
When I was on dialysis, I was always surrounded by older people who were in so much more pain and difficulty than I was. And at first it was kinda depressing to be around that, but it eventually made me more grateful for my situation. If I was meant to get sick, I’m glad it happened now. I’m glad it happened when I had the strength to fight it.
So Alhamdulillah, always 💚🥰
So this is a little rant post.
Yesterday I bought a dress from Primark in my usual size 12. When I got home & properly tried it on, it was WAY too big. Okay fair enough, so I went back today and on checking my dress tah, it was actually a 10. So I went and got a size 8.. well that was still massive.. I endorse up buying a size 4!!! A SIZE 4!!!
Now I'm not normally one to complain about going a smaller size in dresses but this is ridiculous.
I found this extremely annoying because for me, I am nowhere near that size but it played on my mind about how much I would kill to be a size freekin 4 & especially for someone like myself who struggles with an eating disorder.
The UK and their clothes sizes are all over the place! They seriously need to sort this shit out. Because I actually have no faith in the UK sizing ATM.
Sharing this recipe from @thegreenkidney ❤️ Cauliflower buffalo wings and vegan nachos 👊🏼 100% plant-based 🌱 Cheesy nacho sauce is made from butternut squash and nutritional yeast which is packed with nutrients, fiber and protein! Cauliflower wings are vegan and gluten free! Your stomach and your kidneys will thank you!
How appetizing does that look? 👌 .
See more great food and tips for better renal health >>> @renaldiethq 🍴👩⚕️
Posted at: 2019-07-19 16:24:45
I spent last night worrying - I can feel the stress and heaviness of next weeks appointment starting to weigh on me.
See at these appointments doctors and therapists play with your child for a few hours and then tell you what they think his life will be like. They don’t really consider contributing factors like 24 out of his first 32 weeks of life were spent in hip casts/braces/harness/etc. They don’t consider that his hearing age is only 8 months or so. That he had a hole punched into his stomach just as he was army crawling and has never army crawled since. They just see the deficits. The places he’s at risk to have severe developmental delays. Which sure - somethings yes, we know he’s behind. But we don’t really focus on comparing him to other kids. We focus on how far has he come in his short life, how many surgeries has he already had and will face in the next few months, how many severe ear infections have limited his access to sound, how much time has been spent in the car travelling to appointments - causing us to lose so many days to travel and not therapy. We are such believers that he will do ALL the things; he may be slower to do them but he will get there in his own time. And if he doesn’t - OH WELL. He has such a sweet and goofy personality that he will be the silly guy in the wheelchair, or using whatever adaptations he needs. So we can handle whatever - but we can’t handle others doctors/peoples negative approaches or only focusing on deficits. We come from such a place of love that it’s not Beau’s future that we’re scared of - it’s other people’s reactions to it. #latenightthoughts
NSAIDs stand for (Nonsteroidal Anti-Inflammatory Drugs). They are a drug class that reduce pain, decrease fever, prevent blood clots and decrease inflammation.
They’re available over the counter or, in higher doses, by prescription.
Some of the most common NSAIDs include ibuprofen (Motrin), naproxen (Aleve) and celecoxib (Celebrex).
As we all know no medication is completely safe. Long term use of NSAIDs can cause digestive problems including stomach upset, heartburn, and ulcers. KIDNEY INJURY, easy bruising or bleeding, and mild allergic reactions like rash .
✅Take the lowest effective dose possible in the shortest period of time.
✅There are over 20 types of NSAIDS including prescription ones e.g diclofenac , misoprostol ; you could be taking more than one without knowing.
✅Appropriate monitoring (such as the occasional blood tests) should be done with constant use of NSAIDs
✅AVOID taking NSAIDs if you have CKD/ renal insufficiency .
If your pain, fever or inflammation isn’t going away or you think your NSAIDS isn’t working talk to your doctor . Do not constantly keep taking these pills 💊 . There may be a safer option for Kidney patients like Acetaminophen ( Tylenol)
#chronickidneydisease#invisibleillness#endstagerenaldisease#kidneyfacts#ckdawareness#kidneytransplant#Kidneymemoir#beahero#givelife#iheartdonors#kidneytransplantpatient #kidneytransplantneeded #mylifemyreality#myfaith#kidneyhealth#ibuprofen#acetaminophen#Renaldiet#NSAID#panadol
Posted at: 2019-07-19 14:30:19
Have a dream but scared to go for it? ⠀⠀⠀⠀⠀⠀⠀⠀⠀
Too much to learn. Too many unknowns? All the 'what abouts'?
It's normal. It's a part of growth. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
Embrace the fears — the questions. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
They will lead you to the steps you need to take. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
And then expect mess ups. When you know, it's part of the process you don't judge failure as bad. It's just a part of learning what does and doesn't work. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
So where to start? ⠀⠀⠀⠀⠀⠀⠀⠀⠀
Start by admitting you have the dream and that you want to go for it. Then begin taking action. Knowing it won't always feel comfortable. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
But having the dream and doing nothing isn't very comfortable either.
You've got this. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
You are resourceful. You are wise. You are courageous.
🚨 Today’s #featurefriday features another GIVEAWAY!🚨We've partnered with @phabulousfood to give away this exclusive large tote (color and monogram of your choice) full of Phabulous Foods #PhabMix! Perfect for the beach, park, yoga or anywhere you are on-the-go.
All you have to do is 👇
1. Like this photo
2. Follow @MonogramsonWebster and @phabulousfood
3. Tag a friend in the comments who would enjoy it too
BONUS: extra comment tags are extra entries!
** Open to local Chicago residents only; winner will be announced July 26th. Good Luck!!
Getting My fistula accessed today for the first time. It may or may not have stenosis (narrowing) clinic says I do, doctor says I don't. I still have my old Cath in but can't use it becauss it's hurting. I haven't had dialysis since Monday so I habe toxins building up giving ammonia breath. So stay tuned I might have another mental breakdown if this fistula doesnt work.
You know how in movies when the lead character is having one of those AHA - life - defining moments... They are usually head out the window of a moving car, wind blowing their hair & a carthatic uplifting yet slow moving song is playing on the radio? I know you know the moments. It often happens in a taxi enroute to NYC. You can visualise it right?
Ok so I didn’t have that exact moment. There is no wind in my hair & no epic soundtrack; I mean I could creatively imagine the dialysis machines are some kind of music & that the window I’m looking out of has a view other than the side of a hospital building. But it’s not that moment at all. However for whatever reason (wild imagination perhaps) I feel like it’s all going to be ok. I feel like I’m having an AHA moment.
I’m at peace. I’m here. In this very moment. I’m here. And I’m so grateful for that. I got to workout four times this week & I’m starting to feel like me again. I feel more energised. I feel like me again.
I have no idea what caused my funk? My downwards mental spiral. Or if in fact the reason why is relevant at all? But I think I can say, with 97% confidence, I’m back baby!! So what are you grateful for today? ✨ Emmy Xx
The number of American adults who have chronic kidney disease is now estimated to be 37 million – that’s one out of every seven or 15 percent of the adult population – according to the latest data from the Centers for Disease Control and Prevention.
The higher estimate in the number of Americans affected by #chronickidneydisease, versus statistics reported in previous years, is due to several factors including an aging population and increased prevalence of risk factors such as #diabetes and #hypertension, according to the CDC. Check the link in our bio for more information.
Posted at: 2019-07-18 20:46:13
Data are insufficient to draw conclusions about oral anticoagulant therapy for advanced stages of #CKD. To learn more, click the link in our bio.
Posted at: 2019-07-18 20:43:24
May 1, 2014 , diagnosed with stage four chronic kidney disease with 26% function left. The day I thought my life was over and flashes before my eyes
April 29,2015- the day I almost lost my life , and the doctor told my family if she does not start dialysis today she will die
May 1, 2015- got my fistula put in for dialysis
June 2015- got the phone call I had a donor and would get my transplant August 2015
July 14, 2015the day I got a call that changed everything, I wouldn’t be getting a transplant anymore due to reasons the doctor did not believe it was a perfect match.
July 17, 2015- the day I got a phone call from my
Transplant coordinator that I have a 95% chance of getting a transplant in the next 24-36 hours.
July 18,2015- the day my life changed for the better.
My last day of dialysis , while being hooked up to the dialysis machine I got the call. I would be getting a transplant that day! That day changed my life for the Better and I wouldn’t trade it for the world ! This is my most recent photo of me living and loving my happy healthy life !! For those of you out there still suffering from kidney failure on dialysis , there is hope!! You will get you happily ever after and get a kidney just keep patient and be positive !!!! And a huge thanks to my family and al my supporters that still support every day!!! #chronickidneydisease#kidneydiseasesucks#beanorgandonor#savealife#kidneydiseaseawareness#kidneytransplantsurvivor #kidneytransplant#organdonor
Casper will be 18 very soon. Actually, me and him both will be celebrating our birthdays in August. I need to have him a little birthday celebration to celebrate 18 years together. My little baby was diagnosed with Chronic Kidney Disease a few weeks back. He is doing ok, but he has to be on a special diet for the rest of his life. I noticed back in February he was starting to lose weight. Over the past several months I’ve had him back and forth to the vet doing tests and then finally one test showed what the issue is. I finally got him to start eating the medicated food by itself. Casper isn’t very picky when it comes to food anyways, but they said to do it slowly. On the bright side, he seems very excited and happy with the food. I just wish there was a cure for this. 😞 #chronickidneydisease#cat#catstagram #catsofinstagram #Casper#instacat
Posted at: 2019-07-18 18:37:00
Dinner was mac and cheese with roast potatoes and fruit yoghurt. Was meant to have broccoli but it never made it onto the plate for some reason! And the roast potatoes were inedilble lol
18/07/2019 - today is the day... after 3 month...kite jpe lg botol kecik ni.. huhuhu..pastinya sume kengkawan HD akan ghiso menanti results blood test kuar..nk plak lepas ghaya ni kan.. huhuhu...trima jee laa nti keputusan nyew.. dan bersiap sedia lah jpe doc nephrology memasing tadah telinga Yee..😁hehehe..arini awal treatment berjalan seperti biasa... dengan UF 2.3 + 0.5 = 2.8..tp Di hujung2 treatment ade rasa goyang sikit..kaki dah start cramp..memula ngat boleh lah tahan sakit..tp X leh tahan sangat sb kejap sakit kejap okey..cramp tu berulang2 sakit.. lastly terpaksa gak stop treatment 6minit awal..haishh...sakit sgt smp nurse terpaksa urut kaki dgn minyak angin panas.. baru die slowly okey.. alhamdulillah..dlm hati dah ghiso klu dah xdpt abis 4 jam treatment ni kompom akn balik ade hutang UF...tp alhamdulillah xdew hutang..tp dpt jugak bonus UF arini 300gram... hihihi..dah lama xkena cramp masa tgh HD..slalu kena kt umah jek masa tido... nangis kite tetengah malam tahan sakit cramp tu... Allahuakhbar..😔bile dah rasa okey sikit baru nurse cabut jarum dan boleh balik..hurmm.. alhamdulillah..😊
A yummy vegetarian recipe shared by @jenhernandezrd 👌
The good news is: it’s so easy to create from ingredients you probably already have in your fridge.
I N G R E D I E N T S
1️⃣ cucumber, sliced into rounds 🥒
1/2 cup hummus (spicy 🌶 red pepper for me 👍)
1/4 cup-ish crumbled feta (soft cheeses are lower in phosphorus than hard cheese like parmasean)
6️⃣ (ish) cherry tomatoes, quartered
Pepper and parsley for garnish
Lay cukes on serving plate. .
Put hummus into sandwich baggie and snip off end. .
Add about a teaspoon on top of each cuke. .
Sprinkle feta over cuke/hummus creation. .
Place a quarter of cherry tomato on top. .
Season with black pepper and parsley until it looks pretty 😍
Bite-size = portion controlled for #potassium 🙌
See more great food and tips for better renal health >>> @renaldiethq 🍴👩⚕️
I often get asked why I wear a "bean" around my neck. For many of you who don't know, I was born with Vesicoureteral Reflux, a condition in which urine back-flows into the kidney(s) causing severe permanent damage if not detected early. Unfortunately that was the case with me when my kidney almost ruptured at the age of 2, requiring several emergency surgeries on my kidney, ureter & bladder. A chunk of my childhood was spent in & out of hospitals, having endless tests run and traveling to see the best specialists in the province. As I've aged my kidney function continued to deteriorate (getting as low as 8% 🙀) resulting in the removal of my right kidney almost 6 years ago (Thanks to the top Urologist in Calgary, he’s my life saver!!) Although my health is not 100% and I still deal with reoccurring stubborn kidney infections that leave me in the hospital for days on end, I'm incredibly grateful for the life I live. I wear this kidney bean for the kidney I lost and as a little reminder to myself to properly care for the kidney I still have (especially since its function is not always ideal😭). March is National Kidney Month & today marks World Kidney Day, so do yourself a favour friends and get your kidneys screened!! If you battle with diabetes, hypertension (like me) or have a family history of kidney failure your screening is FREE, so no excuses! 💚 Never take your health for granted, we only live once!! 🙃